Funduro for Justin

Hope

14 December 2019 | Health

Walvis Bay • [email protected]


Dune 7 Adventures was a hive of activity recently, with the sound of roaring motorbikes and party tunes conjured up by local musicians filling the air.

The occasion was a funduro hosted to raise funds for Justin Koch (10) who requires another stem cell treatment in India, for which he needs about N$200 000.

Justin was diagnosed with cerebral palsy at a very young age.

According to Justin’s mom Kim, they managed to raise N$10 000 thanks to the funduro.

“This was the first funduro we organised, with 37 bikers and quadbike riders taking part. We learned hard lessons and will be prepared for the next one. Still, the bikers really enjoyed the track that was set out. However, some unforeseen expenses incurred on the day limited the amount of funds we raised.”

They hoped to have at least 100 bikers attending the event and wanted to raise N$25 000.

“We are now praying that God provides so that Justin can have his second surgery, which is actually the most important. Unfortunately we don’t have more time to do another fundraiser.”

Justin and Kim travelled to Mumbai, India, for his first session of stem cell treatment in July this year. The treatment uses Justin’s own cells and is completely safe.

“There is a 98% guarantee that Justin’s condition will improve with this treatment. It requires that he be hospitalized in India for seven days. Thereafter he will receive four hours of therapy per day, six days a week over a period of six months afterwards.”

The specialised therapy program is designed to stimulate cells which will assist in them multiplying and repairing brain damage.

The second session is scheduled for this month and together with the necessary scans, it will clearly indicate any improvements.

Justin has already shown huge improvements after the first treatment.

“He drooled severely his entire life due to low muscle tone in his face/mouth. We couldn’t go anywhere without having a pile of facecloths in his bag. After the first session, the drooling is no more. We are still shocked about this huge change.”

Kim said that in June this year, while they were India, they discovered that Justin’s lungs are small and his hips rotate inwards.

“We had no idea about this. None of the doctors we consulted over the past 10 years has ever been concerned about his lungs or hips and have never suggested x-rays. When you look at Justin’s hips, you can’t physically see that they are rotated inwards.

We are not sure if his hip problem was there from birth or if it developed later and then worsened.”

This new information enabled a better understanding about why every ’flu Justin picks up, develops into bronchitis overnight. This also effects his chest badly.

“We assume his lungs are underdeveloped due to being born premature at 29 weeks.”

Justin lies down, his legs are not straight and naturally flop open. When he is seated in his wheelchair, his legs cannot bend at 90 degrees. His legs flop open at the knees and when he sits.

After four months of therapy, repeated stretches, strapping and continuously correcting the position of his limbs, there has also been improvement in his leg position.

“His legs now lie in a much better position after all these years! This is also the first time in Justin’s entire life that he can sit on the edge of a bed or chair. He achieved this goal within the first two months after stem cell surgery.”

Justin has also been off his seizure medication for more than a month now.

“He can now slowly lose weight and become more active during therapy. The meds made him pick up a large amount of weight.

We praise God for all these changes. It’s truly miraculous.”

Similar News

 

Corona rumors spreading like a wild fire

6 hours ago | Health

Swakopmund The minister of health and social services (MHSS) Kalumbi Shangula confirmed that a member of the public in Swakopmund had decided to undergo...

Olivia opens up about hair loss

15 hours ago | Health

Swakopmund • [email protected] Local radio personality Olivia Christians (38) recently discovered that she has acute alopecia areata, a condition that causes hair loss....

Public still not adhering to lockdown regulations

17 hours ago | Health

Walvis Bay • [email protected] Rear Admiral Sinsy Nghipandua, the commander of the Namibian Navy, said that a total disregard for lockdown measures is the biggest...

Ignorance is bliss

2 days ago - 29 March 2020 | Health

Walvis Bay • [email protected] The construction of a 150-bed containerised isolation medical facility located behind the Walvis Bay State Hospital is on track....

Battle lines drawn

3 days ago - 28 March 2020 | Health

The lockdown began at 23:59 on Friday 27 March and continues until 23:59 on 16 April 2020 and will remain in force for 21 days....

Water reconnection a boost for COVID-19 mitigation

4 days ago - 27 March 2020 | Health

Swakopmund • [email protected] The governor of the Erongo region, Cleophas Mutjavikua, said that residents living in the Erongo region who had their water disconnected...

Emergency medical facility for Walvis Bay

4 days ago - 26 March 2020 | Health

Walvis Bay • [email protected] The ground-breaking ceremony of a 150-bed emergency medical isolation facility to be constructed that will cater specifically for Covid-19 cases,...

Criticism of quarantine grows

1 week ago - 24 March 2020 | Health

Swakopmund • [email protected] who travelled abroad and returned to Namibia to be quarantined at the Greiter’s conference center near Brakwater, fear the worst because another...

Rössing donates N$200 000 to combat COVID-19

1 week ago - 24 March 2020 | Health

Windhoek • Contributed China National Nuclear Corporation (CNNC) Rössing Uranium donated N$200 000 to the ministry of health and social services on Friday...

Welwitschia extends a helping hand

1 week ago - 19 March 2020 | Health

Walvis Bay • [email protected] Welwitschia Private Hospital initiated a corona-care campaign to ensure that the Walvis Bay and Swakopmund state hospitals are equipped...

Latest News

Tuinier oes reusepatat

15 hours ago | Local News

Swakopmund · [email protected] Ben Tjimune, ’n tuinier van Swakopmund, het verlede Dinsdag ’n reusepatat met ’n gewig van 115 kg by sy skoonsuster, me. Cecelie...

Cosdec en dorp smee nouer...

15 hours ago | Education

Swakopmund Die bestuurskomitee van Swakopmund se munisipale raad het aanbeveel die raad keur ?’n versoek van die Sentrum vir die Ontwikkeling van...

Olivia opens up about hair...

15 hours ago | Health

Swakopmund • [email protected] Local radio personality Olivia Christians (38) recently discovered that she has acute alopecia areata, a condition that causes hair loss....

Namport geared to curb spread...

15 hours ago | Infrastructure

Namport’s acting chief executive Kavin Harry said the company remains committed to playing its part in supporting the World Health Organisation and government’s efforts to...

AfriTin Mining up and running...

15 hours ago | Business

AfriTin announced in mid-March that it has begun selling concentrate, in line with the parameters set by an off-take agreement signed in August 2019. “The...

Grumpy's fishing report

15 hours ago | Fishing

Outdoor Centre • Grumpy GramowskiAnglers on the boats made some good kob catches especially in the area of Mile 6. What's quite impressive is that...

Public still not adhering to...

17 hours ago | Health

Walvis Bay • [email protected] Rear Admiral Sinsy Nghipandua, the commander of the Namibian Navy, said that a total disregard for lockdown measures is the biggest...

Chinese vessels found in Namibian...

1 day - 30 March 2020 | Fishing

Swakopmund • [email protected] Six Chinese vessels discovered in Namibian waters last week are currently moored at the Namibian Navy base harbour.The crew has...

Ignorance is bliss

2 days ago - 29 March 2020 | Health

Walvis Bay • [email protected] The construction of a 150-bed containerised isolation medical facility located behind the Walvis Bay State Hospital is on track....

Load More